Endometriosis Australia

Endometriosis Australia

Jnine is a proud partner of Endometriosis Australia

Endometriosis Australia (EA) is a nationally accredited women’s health charity that develops, undertakes, and supports endometriosis education and research. EA works tirelessly to develop awareness about endometriosis, share stories and experiences of those living with endometriosis, and to raise funding for research related to prevention, diagnosis, and cure of the condition.

EA aims to support patients, medical professionals, and carers. The organisation’s impact is extending beyond the girls, women, and gender diverse Australians who have endometriosis, to educating and engaging with the Australian community on matters related to endometriosis.

Together with its Board, Committees, and clinical collaborators, Endometriosis Australia has developed resources including fact sheets, education modules, and other related resources. Visit the Endometriosis Australia website to learn more.

About Endometriosis

Endometriosis can occur in females and in those assigned female at birth as young as eight years old. The condition can remain present throughout their reproductive life and into or beyond menopause. On average, it takes 6.4 years for those living with endometriosis to be diagnosed from the time the first symptoms present. This life-defining disease affects one in nine girls, women, and gender-diverse Australians, which equates to a staggering 830,000+ Australian ‘EndoWarriors’.

Despite being as common as diabetes, endometriosis has no known cause and no “one size fits all” cure. Endometriosis affects sufferers in a variety of ways, with patients experiencing symptoms including severe period pain, pain outside of menstruation, hormone related conditions, fatigue, bloating, food intolerances, and chronic pain. Endometriosis and Adenomyosis has also been found to impact fertility, causing difficulty getting pregnant for one in three sufferers, with many requiring additional support from fertility specialists to start or expand their family.

Endometriosis Australia believes it is fundamental that endometriosis be recognised for what it is: a life-defining chronic disease. Endometriosis is more than a heavy period, cramping, hormonal imbalances and “moodiness”, or unexpected periods.

Endo@Work

The Endometriosis Australia Endo@Work workplace assistance policy aims to enable people with endometriosis to engage more fully in work while still  supporting their own wellbeing and maintaining productivity. This is fundamental in all employment but especially for sufferers of this life-defining disease.

Our Endometriosis Australia funded research - a snapshot below:

  • one in six people with endometriosis will lose their employment due to managing the disease
  • one in three will be overlooked for a promotion
  • 70% have to take unpaid time off work to manage symptoms
  • 50% said lack of workplace flexibility was a significant problem
  • 79% reported that work from home protocols made managing their symptoms easier
  • 60% said they will more productively working from home
  • 90% thought flexibility in hours and working from home could improve their management of endo in the workplace.